This week we’d like to help a one year old boy called Jasper, who has been living in a travel lodge with his family while on palliative care.
Jasper has a rare heart condition that puts him at high risk of sudden death. He has had a lot of treatment and surgeries in his short life, but sadly nothing else can be done for him now.
Jasper’s big brother is 8. He has epilepsy, incontinence and speech and language delays, which he has found very tough. His mum said: “He is excluded from activities a lot due to his epilepsy and gets very upset. He is such a loving, kind boy."
Jasper’s big sister is 6. She has asthma, eczema, sleep apnoea and allergies. She is also being assessed for ADHD.
Jasper’s mum cares for the 3 children on her own. They've been living in a small 2 bedroom flat waiting for a ‘medical priority move’ for the past three years. They had to move to a travel lodge temporarily – with all their medical equipment - while some repairs were done to the flat, which was hugely stressful. They have just been allocated a new council home, which is great news, but the floors are concrete.
They were nominated by their social worker, who said: “Jasper’s mum plans to gradually build up the furniture and other things they need - but she needs help with flooring now. Flooring would be life-changing for these 3 children.”
Jasper’s mum said: "I don’t know how long I will get with Jasper. Everyday is a worry making sure my children are safe and well … and having carpet would really make the house a home where the children can keep warm and play safely.”
As well as providing carpet, we would also like to help them with some of the furniture they'll need, toys for the children and some things for Jasper’s mum as well (she hasn’t requested anything for herself but we’d like to do it for her).